24 SEP 2018
End of Life Care
Thank you for taking the time to email me about care for people with terminal illnesses.
I understand your concern on this matter and hope the following information on this topic from the Department of Health is reassuring:
We must ensure that people receive the most appropriate care personalised to their individual needs as they approach the end of their life.
In 2014, the Government commissioned the Choice in End of Life Care Programme Board to report on how end of life care services could be supported to enable people's choices to be delivered. The Board published its findings in February 2015 in A Review of Choice in End of Life Care.
In July 2016, the Government outlined six commitments to the public to improve end of life care nationally by 2020. These commitments are: honest discussions between care professionals and dying people; dying people making informed choices about their care; personalised care plans for all; the discussion of personalised care plans with care professionals; the involvement of family and carers in dying people's care; a key contact so dying people know who to contact at any time of day.
The NHS must meet these commitments, and new measures are being developed to ensure local health and care leaders are meeting the high standards expected of them.
The National End of Life Care Programme Board is implementing the Government's ambitions, in partnership with all relevant arm's length bodies, to ensure action and accountability. A report was published in August 2017, which highlights the professionalism and compassion throughout the Specialist Palliative Care (SPC) sector, but recognises that there are improvements to be made. You may be reassured to know that, whilst SPC services do not receive a rating from the Care Quality Commission (CQC), they are accountable to the CQC's inspectors, who are committed to enforcing rigorous standards of care throughout the NHS.
Palliative care services must be properly funded. Hospices receive their funding from charities as well as the NHS. The commissioning of services like hospices is a local matter, and the responsibility of clinical commissioning groups (CCGs). On average, hospices receive 30 per cent of their funding from NHS sources, and this year, children's hospices will receive £11 million from NHS England. However, the level of hospice funding is best decided by local health commissioners, who have the best understanding of the needs in their areas.
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