Campaigns. It is important that I continue to know the strength of feeling on an issue and I prefer to respond to every inquiry, but the sheer size of campaign correspondence means that it is hard to justify to the tax payer the cost and time taken for individual written replies, so regrettably I will no longer reply to every item of campaign correspondence.  I will  post a response to the campaign on the "Responses to campaigns" page of my website.

I am sorry to do this, as it is rather impersonal, but can see no other way of maintaining a good service for all my constituents unless I approach campaigns this way.

28 JAN 2019

Myalgic Encephalomyelitis (ME)

Thank you for taking the time to contact me about Myalgic Encephalomyelitis (ME)

I welcome ME Awareness Week, and I hope it helps more people understand this condition, which can be so frustrating and distressing for many. I hope the following information on this topic from the Department of Health is of interest:

There is currently no cure for ME/CFS, there are treatments that may help to ease symptoms, although no one form of treatment may suit every patient. Patients should be involved in decision-making throughout every stage of their care. Furthermore, patients should be offered information about local and national self-help groups and support groups for people with ME/CFS and their carers. The Medical Research Council (MRC) and the National Institute for Health Research welcome high quality applications for research into all aspects of ME/CFS. ME/CFS research is a current MRC priority area and so far over £2 million has been invested into this research area.
The majority of services for people with ME/CFS are the responsibility of local clinical commissioning groups. To assist diagnosis, the National Institute for Health and Care Excellence (NICE) produced clinical guidance on the diagnosis, treatment care and support of children and adults with ME/CFS.
NICE is currently reviewing these guidelines. This process will require thorough and careful consideration, and NICE expect to publish new guidelines on ME/CFS in 2020. These new guidelines will take into account patients' concerns about the PACE trials and the effectiveness of some existing recommendations.

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